DONT SLEEP CAMPAIGN

DONT SLEEP CAMPAIGN

Is an online campaign under Children Global Initiative to raise awareness in
United States and around the world on the effect of Nodding Syndrome on children who are the victims in N. Uganda and South Sudan and to mobilize the necessary resources to support them.



WHAT IS NODDING SYNDROME

Nodding syndrome is an uncommon epileptic disorder of neurologic
a condition characterized by episodes of repetitive dropping forward of the head, often accompanied by other seizure-like activity, such as convulsions or staring spells which occurred in children aged 5-15 years old in N. Uganda and South Sudan.

FUNDRAISING TO SUPPORT SUPPORT CHILDREN WHO ARE VICTIMS OF NODDING SYNDROME IN N. UGANDA AND S. SUDAN

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Effects of Nodding Syndrome on Children:

Mysterious nodding disease struck Northern Uganda, more than 3500 children between age of 5-15 still suffers from the effect of this debilitating dreaded disease leaving children with lifelong disabilities.

Severe epilepsy-like seizures grip the children and falling, the head nodding several times a day, they would close their eyes and their neck muscles would go temporarily limp repeatedly drop their heads to their chests, they struggle to eat and become shells of their former selves, stunted growth and deterioration of cognitive abilities, intellectual difficulties, and characteristic mannerisms, such as an awkward gait and deadpan facial expressions
 
Nodding syndrome leads to malnutrition or even death through seizure-associated accidents. During episodes, a child stops feeding and appears non‐responsive, with or without loss of consciousness. It is a progressive and debilitating syndrome that robs children of their future. The victims are riddled with adject poverty, extreme hunger, relentless diseases, and entire generation is dying in silence.

A nonprofit that operated two clinics that fed and treated many of the kids ran out of money and shut down completely. There is no cure for syndrome. There are thousands of children with nodding syndrome without any aid at all. It’s a Brilliant genocide children dying like animals. This is a sad story that demand immediate attention from everyone including international communities.

URGENT NEEDS ON THE GROUND


  1. Anticonvulsant drugs as the only best treatment to limit seizures.

  2. Optimizing Nutrition.

  3. Providing physical and cognitive therapy.

  4. Social support.

  5. Building clinics across the region to treat the victims

  6. Rehabilitation centers across the region.
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The situation on the ground is dire which requires an urgent and immediate attention of everyone and international communities to mobilize the needed resources to give hope, rehabilitate and support the victims of nodding syndrome.
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URGENT APPEAL
Please kindly donate whatever you can today to provide urgent needs and immediate supportive care.
Please anything helps.

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DONATE NOW
OTHER WAYS OF SUPPORTING DON’T SLEEP CAMPAIGN

FLYER

Help us spread the message and raise awareness around the world on the effect of nodding syndrome in N. Uganda and S. Sudan and mobilize resources by using our flyers on your social media platform like twitter, Instagram, Facebook header and story section

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CREATE YOUR OWN ONLINE FUNDRAISER

Create your own online fundraiser with the tools we provided to make it a success to benefit
victims of nodding syndrome.

Create Online Fundraiser

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FACEBOOK GROUP

Invite your friends and families to join Don’t Sleep Campaign Facebook Group page at
https://www.facebook.com/groups/463212238949696 so that we unite and become one family without border to change the world of Nodding syndrome

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